Currently, in close collaboration with clinicians, it coordinates several national registries and cohort studies:
- Swiss Growth Registry (SGR, with pediatric endocrinologists)
- Swiss Pediatric Inflammatory Brain Disease Registry (Swiss-Ped-IBrainD)
- Swiss Pediatric Renal Registry (SPRR, with pediatric nephrologists)
- Swiss Primary Ciliary Dyskinesia Registry (SPCDR, with several medical specialties)
- Swiss Pediatric Airway Cohort (SPAC, with pediatric pulmonologists)
- Swiss Cerebral Palsy Registry (Swiss-CP-Reg, with pediatric neurologists and rehabilitation specialists)
- Swiss Registry for Neuromuscular Disorders (Swiss-Reg-NMD, with several subspecialties)
- Swiss Rare Disease Registry (SRDR, with several pediatric subspecialties)