SwissPedRegistry is a research platform for pediatric registries. It is part of SwissPedNet, the Swiss research network of clinical pediatric hubs. SwissPedRegistry provides expertise and advice on developing and overseeing epidemiological or clinical registries collecting data on children or persons of any age. This includes advice on databases for registries; data set and data collection; data transfer and linkage; ethics applications; questionnaire design; contracts; and data safety measures. SwissPedRegistry can also host registries if this is desired. SwissPedRegistry also contributes data and expertise to international registries and research projects. It collaborates closely with Swiss RDL – the medical Registries and Data Linkage center at the ISPM Bern – in particular for data linkage and software development.
For more information, please refer to the article on SwissPedRegistry in “Paediatrica”.